Opportunity: VOR Board and Committee Service

June 2014

VOR's strength rests on the time, talent and ingenuity of our board and committee members, with much of the work getting done in committee.

VOR has a number of standing committees and we’d like to make sure that VOR members have the opportunity to indicate your interest to serve on the committee(s) that reflects your interests and availability.  We are also seeking candidates for VOR's Board of Directors for the term beginning July 1, 2015.

A volunteer form and descriptions of each VOR Standing Committee and form to indicate in your interest in serving  on a VOR Committee and/or the VOR Board of Directors is available here

Forms can be returned to:

Email:  This e-mail address is being protected from spambots. You need JavaScript enabled to view it  (Sybil Finken, VOR Immediate Past President)

Fax: 605-399-1631

U.S. Mail:  VOR, P.O. Box 1208, Rapid City, SD 57709

Thank you for your consideration.


Sincerely,

Ann Knighton, VOR President
 
 

VOR Submits Testimony for Record Asking Senate to Prohibit Federal Funding for Forced Deinstitutionalization; Hundreds of Choice Advocates Share Their Support

VOR is a national organization that advocates for high quality care and human rights for all people with intellectual and developmental disabilities (I/DD).  VOR calls on the Senate to prohibit the use of U.S. Department of Justice appropriations in support of deinstitutionalization activities which evict eligible individuals with I/DD from their HHS-licensed and funded Medicaid homes, in violation of federal law.

Read VOR's Testimony Here

Nearly 500 advocates for family members and friends also submitted a statement for the record in support for VOR’s testimony.

 

VOR Submits Testimony for Record Asking Congress to Prohibit Federal Funding for Forced Deinstitutionalization; Hundreds of Choice Advocates Share Their Support


VOR is a national organization that advocates for high quality care and human rights for all people with intellectual and developmental disabilities (I/DD).  VOR calls on Congress to prohibit the use of U.S. Department of Health and Human Services’ (HHS) appropriations in support of deinstitutionalization activities which evict eligible individuals with I/DD from their HHS-licensed and funded Medicaid homes, in violation of federal law.

Read VOR's Testimony Here

See related Senate Testimony

588 advocates for family members and friends also submitted a statement for the record in support for VOR’s testimony, and many others submitted their own testimony.

 

Home is Where the Heart Is

The Coalition for Community Choice (CCC) is a unified voice for increasing options and decreasing barriers to housing choices.

By Desiree Kameka, Director of Community Education & Advocacy, Madison House Autism Foundation; and Tamie Hopp, Director of Government Relations & Advocacy, VOR; Originally published in EP (Exceptional Parent) Magazine (April 2014), excerpts posted here.

Did you know

  • In the next decade, over 800,000 on the autism spectrum will transition to adulthood. 
  • Almost all states have waitlists for accessing adult support services, yet the average growth of funding nationally is only 3.2%.
  • Almost one million individuals with intellectual and/or developmental disabilities (I/DD) are still living with caregivers over the age of 60.

In response to these staggering statistics, there is a movement of families and local organizations working together to create sustainable solutions to this national housing and support service crisis. They are organized and gathering information at conferences, many have joined together for advocacy as the Coalition for Community Choice, and are sharing solutions at the new Autism Housing Network.

Read full article (EP Magazine, April 2014)
 

VOR Webinar Series: Regional Meetings - The Need for Advocates to Act Global and Local

Hosted by VOR's David Hart and Geoff Dubrowksy, VOR's "Regional Meetings: The Need for Advocates to Act Global and Local" Webinar, was held Thursday, March 20 to discuss VOR's new vision for regional meetings between VOR members, families, guardians and like-minded advocates. We discussed the advantages to state-level and national advocacy, networking, and development when advocates in a region have opportunity to connect with one another. 

To listen to a recording of the webinar, contact Tamie Hopp at This e-mail address is being protected from spambots. You need JavaScript enabled to view it for a recording (MP3 format).

To download the presentation (PDF), click here

 

Coalition sends letter to CMS re: New "Community" Rule

March 5, 2014

A letter signed by 41 organizations, including VOR, was sent this week to Marilynn Tavenner, Administrator for the Centers for Medicare & Medicaid Services. Organizations, representing the Coalition for Community Choice, expressed “appreciation of the earnest effort to balance many perspectives in your consideration of Home and Community-Based Services (HCBS) Settings Final Rule (CMS 2249-F/2296-F),” while also requesting that CCC have “opportunity to review proposed State Guidance Letters and provide input before publication.”

Read letter here
 
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