As part of our Fall Membership Drive, we have created a letter that we hope you will send out to the members of your family organization. The purpose of the letter is to show the other families in your group who advocate locally that VOR can help them advocate nationally and unite with families in other states with shared experiences.
Please ask your family group to print copies of this letter and include them in their mailings. You may include this with your newsletters, advocacy campaigns, or post it to your group's website. You may also consider including this letter with the "Thank You" letters that go out to members to after receiving donations to your group.
Download the Membership Letter here
In a petition dated June 23, 2020 filed with the U.S. Department of Health and Human Services (HHS), the ACLU, SEIU, and several partner groups outlined concerns with the federal response to the novel coronavirus epidemic and used these concerns to call for a 50 percent reduction in congregate care nationwide. The petitioners defined congregate care to include nursing homes, intermediate care facilities for individuals with intellectual disabilities (ICFs/IID), psychiatric facilities, and home and community-based services (HCBS) group homes.
On July 1st, VOR issued a firm response in opposition to ACLU and SEUI’s irresponsible and unreasonable demand which would remove all forms of long-term care for the elderly and persons with mental disabilities, except for the family home or private residence.
Michelle Ballan, PhD, a professorat SUNY Stony Brook, created a COVID Disability Form to help all individuals with IDD communicate their needs in the event of hospitalization. This form is usefiul whether the patient is verbal or non-verbal.
If your loved one is going to the hospital with COVID-19 symptoms, you may fill out this form to provide useful information to his/her medical team.
On May 22, VOR submitted tesimony to the Senate Appropriations, Subcommittee on Labor, Health and Human Services, Education, and Related Agencies regarding the need to protect Intermediate Care Facilities for Individuals with Intellectual Disabilities as the Appropriations Committee negotiates continuing funding ot the Money Follows the Person Rebalancing Act (MFP) in its FY2021 Appropriations Bill.
In March, 2020 VOR's Legislative Committee sent a letter to the Senate Finance Committee, asking for an opportunity to provide testimony from families whose loved ones’ interests, health and welfare are directly impacted by the Money Follows the Person Rebalancing Program.
VOR continues to speak out about the shortcomings of MFP, and the manner in which it has been used to undermine Intermediate Care Facilities and to deny individuals and families their right to choose ICF care.
Read VOR's March 12, 2020 letter here
Read VOR's July 23, 2019 letter here