Registry connects individuals with Down syndrome with researchers

The National Institutes of Health, in partnership with a third-party vendor, PatientCrossroads, has established a Down syndrome patient registry which will aim to assemble contacts and information sharing among families, patients, researchers and parent groups. According to a press release announcing the new registry, it will allow people with Down syndrome or their family members to enter their contact information and health history in what the institute says is an online, secure, confidential database.

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Doctors and dentists that are experienced in helping people with intellectual or developmental disabilities:

Community Health Centers
Spread across 50 states and all U.S. territories; there are 1,200 Community Health Centers that provide vital primary care to 18 million Americans with limited financial resources. To find a community health center near you, click on http://findahealthcenter.hrsa.gov

Special Olympics / Healthy Athletes:  Provider Directory
Special Olympics / Healthy Athletes have compiled a Health Care (Doctors and Dentists) Provider Directory for local health practitioners who have experience in the needs and care of people with intellectual and developmental disabilities. To access this directory, visit: http://info.specialolympics.org/ProviderDirectoryHA/search.asp?lang=eng

Below are some links our members have provided for Dentists in their area who see patients with I/DD living in the community:

California - Peter S. Joe, DDS, PC -1427 Mission Street  South Pasadena, CA 91030   (626) 403-1800

Kentucky - The Lee Specialty Clinic  - 1800 Bluegrass Avenue, Suite A  Louisville, KY 40215   (502) 368-2348 - The Lee Specialty Clinic

Massachusetts - Tufts Advanced General Dentistry Clinic - 1 Kneeland St. Boston, MA - (617) 636-4067   Tufts Dental Clinic

Texas - Brenham SSLC - 4001 Texas 36 South, Brenham TX 77833   (979) 277-1630

Texas - Richmond SSLC - 2100 Preston St, Richmond, TX 77469  (281) 232-2075