On July 3, 2017, VOR's Issues and Oversight Committee submitted comments to David English, Chair of the Committee on Guardianship, Conservatorship, and Other Protective Arrangements Act for the Uniform Law Commission (ULC) at the The National Conference of Commissioners on Uniform State Laws. VOR's submission included an introductory letter to the commissioner, comments on the draft of the Uniform Law, and VOR's position paper on guardianship and supported decision making.
People as Pendulums: Deinstitutionalization and People with Intellectual and Developmental Disabilities
By Tamie Hopp, VOR Director of Government Relations & Advocacy in Nonprofit Quarterly, July 16, 2014 (and reprinted in the Summer 2014 Nonprofit Quarterly Print edition)
Early reforms were quite properly motivated by the need for a system of care and supports that responded to the very individualized and diverse needs of the entire population of people with I/DD. These reforms, however, also set the stage for decades of ongoing deinstitutionalization, resulting in the elimination of specialized housing, employment and education options for people with I/DD, leaving some to question the price of “progress.”
As part of our Fall Membership Drive, we have created a letter that we hope you will send out to the members of your family organization. The purpose of the letter is to show the other families in your group who advocate locally that VOR can help them advocate nationally and unite with families in other states with shared experiences.
Please ask your family group to print copies of this letter and include them in their mailings. You may include this with your newsletters, advocacy campaigns, or post it to your group's website. You may also consider including this letter with the "Thank You" letters that go out to members to after receiving donations to your group.
Thank you for supporting VOR, a 501(c)(3) nonprofit organization. Your contribution helps advance VOR's advocacy in support of high quality care and human rights for all people with intellectual and developmental disabilities.
Membership is just $45 and extra donations are welcome.
On July 11th, Mary Lazare, Principal Deputy Administrator and Acting Commissioner on Disabilities at the Administration for Community Living (ACL) spoke at the Autism Society's 2018 Convention in Washington, D.C. During her keynote speech, Ms. Lazare expressed recognition for Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IID) as part of the full system of care. While no recording of the speech exists, third hand accounts of Ms. Lazare's comments have spread throughout social media. "Community Only" advocates were outraged, and have raised their voices demanding retraction of her comments and calling for her resignation.
The Department of Health and Human Services (HHS) recently published a draft of their Strategic Plan for FY 2018-2022. The plan fails to mention ICF's or to acknowledge the specific needs of people with I/DD.
VOR has submitted point-by-point comments to each of the goals and strategies outlined in the plan.