Local families stand up for the rights of people with disabilities, including autism, on Capitol Hill

For Immediate Release - June 10, 2014

For More Information Contact - Tamie Hopp, VOR Director of Government Relations & Advocacy, This e-mail address is being protected from spambots. You need JavaScript enabled to view it ; 605-399-1624 voice

Local families stand up for the rights
of people with disabilities, including autism, on Capitol Hill

WASHINGTON, D.C. - June 10:  Americans with profound developmental disabilities, including autism, are being seriously threatened by the closure of their homes and reduction of services due a shift in government policy that dictates where people with profound disabilities should receive care, without regard to individual choice and level of need.  

In response, VOR (www.vor.net) from around the country came together at VOR’s Annual Conference and Congressional Initiative this week. VOR is a national nonprofit family/guardian organization advocating for high quality care and human rights for all people with intellectual and developmental disabilities (I/DD). Participants were briefed on important issues affecting people who are medically fragile and are fully dependent on 24-7 care for survival.

Medicaid, a federal benefit program, is the primary source of funding for long-term care services for people intellectual and developmental disabilities, including autism . . .  [click here to read full release].

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Did you participate in VOR's Conference and Congressional Initiative? If so, here's a template press release you can personalize and share with your local media. Thank you!

 

2014 Jordy Engels Award Recipients Announced

May 7, 2014 - VOR joins with our Florida affiliate, DSI [Developmental Service Institutions] Supporters, Inc.; Ed and Virginia Carraway, VOR Florida State Coordinators; and David and Leni Engels, long-time VOR members, in proudly announcing the recipients of the annual 2014 Jordy Engels Award:

   Mike Fasano

   Greg Giordano

   John Stokesberry

Warm congratulations Mr. Fasano, Mr. Giordano, and Mr. Stokesberry, and sincere gratitude for their many contributions to the field of intellectual disabilities and advocacy. 

Viola Foster, President, DSI Supporters, Inc. http://www.dsisupporters.org/ 

VOR, Speaking out for individuals with intellectual and developmental disabilities

Ed and Virginia Carraway, VOR State Coordinators; Government Affairs & Legislative Liaison, DSI Supporters, Inc. 

David and Leni Engels, VOR Members and Communications Advisor, DSI Supporters, Inc. 

2014 Jordy Engels Award Recipients Biographies

 

April is Autism Awareness Month: VOR Speaks Out About National Crisis: A Lack of Choice, Quality and True Person-Centered Care For The Disabled

For More Information
Julie Huso, Executive Director
605-370-4652
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Elk Grove Village, IL – April 15, 2015: Across the country, tens of thousands of individuals with developmental disabilities, including autism, are suffering due to lack of access to appropriate care and services.

The numbers representing present and future need are alarming. Almost all states have waitlists for accessing adult support services, with more than 280,000 individuals with developmental disabilities, including autism, going without necessary care in 2013. Almost one million individuals with developmental disabilities, including autism, are still living with caregivers over the age of 60. In the next decade, over 800,000 on the autism spectrum will transition to adulthood.

So where do we go from here?
 

VOR's Michael Klurfeld To Participate at New York Family & Professional Resource Fair

For Immediate Release
December 4, 2013
For more information: Julie Huso, This e-mail address is being protected from spambots. You need JavaScript enabled to view it
 
MANHATTAN - Michael Klurfeld, VOR’s New York State Coordinator, will represent the national organization at the Family & Professional Resource Fair, sponsored by the Manhattan Developmental Disabilities Council, on December 11, 2013.

VOR advocates for high quality care and human rights for all people with intellectual and developmental disabilities (I/DD) across the country.

Klurfeld’s twin sister, Jessica, has Cornelia de Lange Syndrome and an autism spectrum disorder (ASD), and like a substantial percentage of the ASD population, Jessica has some challenging behaviors.

“Because of her behaviors, Jessica has lived in New York State-approved out-of-state residential schools for the past ten years,” explained Klurfeld. 

Although Jessica is now 24 and is supposed to be moved back to an age-appropriate placement in New York, she remains at her school in New Hampshire until an alternative in her home state becomes available.

Read full release

 

At Home in Georgia; Respecting Choice and Ensuring Safe Care

November 19, 2013 (submitted)
Augusta Chronicle * Letter to the Editor
Ann S. Knighton, VOR President and President of East Central Georgia Regional Hospital

Dr. Kenneth Fuller’s editorial (“Closure of Georgia hospitals endangers mental health care,” Nov. 17) is like water in a dry desert: refreshingly right and necessary, but painfully scarce. I share completely his concerns about Georgia’s misguided effort to evict fragile, disabled citizens from their homes.

In 2010, without legislative approval or notice to individuals and their families, and contrary to the Supreme Court’s Olmstead decision supporting choice, Georgia and the U.S. Department of Justice entered a settlement agreement that requires the closure of Georgia “hospitals” – specialized residential programs (ICFs/IID) for people with intellectual and developmental disabilities (I/DD).  Aptly called “safety nets” by Dr. Fuller, Georgia’s hospitals provide life-sustaining care to Georgia’s most fragile citizens.

Read more

 

Bill Choslovsky and Scott Mendel, attorneys who championed choice in Illinois to receive prestigious award

VOR, a national organization who participated as Amicus Curiae in Ligas v. Hamos, offers its congratulations

For Immediate Release, November 8, 2013

Elk Grove Village - Under any circumstance, acts of generosity deserve recognition, especially when it is not sought.

On November 15, Bill Choslovsky and Scott Mendel, two Chicago attorneys who were motived by doing right and not by recognition, will get the honor they deserve.

Both will be receiving the Sister Rosemary Connelly Service Medallion at the annual Misericordia Heart of Mercy Ball for their pro bono legal representation of Misericordia in Ligas v. Hamos, a class action lawsuit that threatened to close private facility homes of individuals with intellectual and developmental disabilities (I/DD) across Illinois.

Read More (Word Version)

Read More (PDF)

 

 
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