Weekly E-Mail Update

VOR’s Weekly E-Mail Update, distributed every Friday that provides members with “real time” news items from across the country.  Each week the most recent Weekly Update will be featured here. To receive the Update directly, please consider joining VOR. just $40/year for individuals. We welcome your referrals!

Most Recent Issue:  No Update November 7, 2014

Developmentally disabled need Holly Center as choice

Linda Scherer, VOR Member
August 28, 2014
The Daily Times (Salisbury, MD)

With news of some changes at Holly Center, I am writing as a family member of a Holly Center resident who is happy in his home, thrives there and receives many services and relationships enhancing his health, well-being and independence.

My brother is 58, has multiple disabilities and has been a resident since 1976, when our parents (now deceased) moved to Salisbury specifically to help assure my brother's placement at Holly Center, which was and continues tob e a top-notch home for him. 

Read full editorial here


VOR To Attend American Health Care Association’s National Conference and Expo

For Immediate Release
October 1, 2014
For More Information
Julie Huso, Executive Director
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
WASHINGTON, D.C. - Julie Huso, Executive Director of VOR, a national organization for people with intellectual and developmental disabilities, will attend the American Health Care Association/National Center for Assisted Living’s Convention & Expo in Washington, D.C. on October 6, 2014.

VOR advocates for high quality care and human rights for all people with intellectual and developmental disabilities across the country. The annual AHCA/NCAL event includes educational sessions, inspiring general sessions, and an interactive Expo Hall for long-term and post-acute care professionals for seniors and people will developmental disabilities.

“VOR represents many individuals with profound intellectual and developmental disabilities who receive high quality care in the private long-term care facilities represented by AHCA/NCAL,” said Huso. “As an exhibitor and participant, we get a chance to thank these providers for their compassionate and skilled care.”

Read more and share (click here for Word version)

SUNY Empire State College’s Cristy Dwyer ’08, ‘10 Wins SUNY ACT Scholarship

VOR Congratulates Cristy Dwyer, our New York State Coordinator, for her outstanding academic achievement!

(SARATOGA SPRINGS, N.Y. – Sept. 26, 2012) SUNY Empire State College School for Graduate Studies student Cristy Dwyer ’08, ’10, has received the Association of Council Members and Trustees of the State University of New York annual Award for Excellence and Student Initiative Scholarship.
“This scholarship recognizes your outstanding academic performance and extraordinary commitment to your campus and community. Your enrollment at Empire State College, attaining an associate and bachelor’s degree while working for the Alcoholism Council of New York, coupled with your dedication to individuals with intellectual and developmental disabilities, were inspiring to our selection committee,” said Pierre Alric, president of ACT.

The $1,250 scholarship provides the recipient with a $1,000 award and $250 toward a donation to the charity of the recipient’s choice [VOR].

Read complete release


Holly Center closure chilling

By Mary Reese, VOR Board Member
August 25, 2104
The Daily Times (Salisbury, MD)

The Holly Center administration recently announced the closure of another of its residential cottages. After this closure, there will only be 4 of the original 9 cottages in service; the current census is well under half of its original capacity. Holly Center is a federally regulated facility operated by the state of Maryland to serve those with intellectual and / or developmental disabilities (IDD).

I am the legal guardian of a 70 year old woman, Ginger, with profound IDD who requires 24/7 total care and is medically fragile. Ginger has lived in a facility based setting and in a group home setting; we have experienced both. The group home, or community residential program, was inadequate to meet her complex needs. The state only allowed Ginger’s admission to Holly Center after she suffered serious injury at the result of the group home staffs’ neglect.

Read full letter to editor


VOR to Meet with South Carolina Families and Participate at South Carolina Association of Residential Care Homes Conference

For Immediate Release: September 25, 2014
Julie Huso, Executive Director of VOR, a national organization for people with intellectual and developmental disabilities, will represent VOR at the South Carolina Association of Residential Care Homes Conference on September 29, 2014.

“We know from our national advocacy that service options are decreasing,” said Huso. “That comes as a surprise to many families and advocates, but service cuts are resulting in fewer and fewer choices, especially when it comes to specialized care provided in residential settings.”
The South Carolina Association of Residential Care Homes (http://scarch.org/) represents assisted living, residential care facilities, home care, home health and hospice groups throughout the state, providing care to individuals with disabilities and the elderly.

Huso will also meet with families of residents of the Coastal Center in Summerville. Coastal Center is a licensed facility home providing specialized supports to more than 150 people with profound intellectual and developmental disabilities.

“Families are the most effective voice for their disabled loved ones,” Huso said. “They know best. It is critical that families be on the frontlines educating legislators and state officials about the unparalleled, comprehensive and highly specialized care provided at Coastal and the State’s other Regional Center homes. These centers are a true community of residents and caring people.”
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