Home and Community Based Services Waivers: An overview

Home and Community Based Services Waivers: An overview

 The Home and Community-Based Services (HCBS) waiver program was established in 1981 as part of Medicaid in the Social Security Act (1915(c)). Under the HCBS waiver program, states can elect to furnish a broad array of services (excluding room and board) that may or may not be otherwise be covered by Medicaid, including case management, homemaker, home health aide, personal care, adult day health care, habilitation, and respite services.  States can request permission to offer additional services. The Centers for Medicare & Medicaid Services (CMS) must grant approval of all waiver applications.   The intent of the waiver is to give states the flexibility to develop and implement alternatives to institutional care for eligible populations. Eligible populations include Medicaid-eligible elderly and disabled persons, physically disabled, persons with developmental disabilities or mental retardation, or mental illness. Individuals must be shown to be eligible for institutional services (such as an Intermediate Care Facility for Persons with Mental Retardation (ICFs/MR) to be eligible for HCBS.  (Source: Duckett, M.J. & Guy, M.R., HCBS Waiver, Health Care Financing Review (Fall 2000). Vol. 22, Number 1, pp 123-125).

To view a chart which compares quality assurance criteria for ICFs/MR v. HCBS, click here. Among other quality assurance advantages, ICFs/MR must meet 8 conditions of participation (CoPs), which are comprised of 378 specific standards and elements. CoPs cover Management; Client Protections; Facility Staffing; Active Treatment; Client Behavior and Facility Practices; Health Care Services: Physical Environment; and Dietetic Services. In contrast, there is no standard HCBS program, although all are required to provide CMS with certain assurances as a condition of waiver approval, including health and welfare; individualized plans of care; and provider qualifications. ICFs/MR are subject to annual onsite evaluations ("surveys"); HCBS waivers are reviewed every 3-5 years.

Note of caution: The “flexibility” catch-22

The cornerstone of the HCBS waiver – state flexibility – is also its catch 22 for participants. Every 3-5 years a state has the option to renew, not renew, or change the terms of its waiver program. HCBS services must be delivered pursuant to the development of a plan of care and based upon assessed individual needs. However, because the HCBS program is an optional benefit and states have the flexibility to determine the service package, number of persons to be served, target group, etc., a participant may find themselves cut from the program or with a different mix of services than in prior years. In Mississippi, for example, an approved waiver resulted in 48,000 people being cut from the waiver program. In nearly every state, Governors are considering changes to the Medicaid program.

There is no question that the HCBS waiver program has allowed thousands of individuals to be adequately served in community-based settings. The residents remaining in our nation’s ICFs/MR, however, are the most fragile and most in need of consistent, high quality, services. When considering the waiver option, individuals, families and guardians are cautioned to weigh the benefits with the costs.

 

An Invitation to Visit an ICF/MR

You are encouraged to visit and tour a licensed Intermediate Care Facility for Persons with Mental Retardation (ICFs/MR) in your area. VOR is happy to put you in touch with a member who can help arrange the visit.

ATTN MEMBERS OF CONGRESS, THEIR STAFF and OTHERS located near Washington, D.C.:  There is an excellent facility in Fairfax, Virginia, a short distance from Washington, D.C. The Northern Virginia Training Center provides residential care and other supports to residents with severe and profound mental retardation, as well as a myriad of health care and other services to individuals living in the surrounding communities. VOR would be happy to arrange for a tour at NVTC (contact Tamie Hopp at 605-399-1624; This e-mail address is being protected from spambots. You need JavaScript enabled to view it ), or you could contact Northern Virginia Training Center directly at 703-323-4000 (Facility Director, Mark Diorio) (http://www.nvtc.dmhmrsas.virginia.gov/).

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Our Family Members: People with Severe and Profound Mental Retardation (VOR Position)

 

Our Family Members –
People with Severe and Profound Mental Retardation:
These are the people Congress had in mind when Medicaid was established.

These are the people that have the most to lose if Medicaid is cut.

 People with severe and profound mental retardation need an effective and credible voice now more than ever.

 They need VOR’s voice and Congress’ support.

Despite tremendous progress relating to acceptance and awareness of people with disabilities, people with the most severe and profound mental retardation are often forgotten because they are unseen.

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Kentucky: Parent Leader Testimonial (2007)

Kentucky Protection and Advocacy Testimonial
By Louise Underwood, President, Hazelwood Friends and Family
VOR Board M ember (retired) 2007

In February 2002, the Kentucky Protection and Advocacy System filed Michelle P. v. Holsinger in federal court. The Complaint alleged that Kentucky improperly wait listed individuals for Medicaid services.

In January 2006, the parties reached a settlement agreement that called for the state to put about $45 million into Medicaid services through 2008, but also requires that the state close admissions to Kentucky’s state operated ICFs/MR as individuals are transferred from the facilities to community settings.

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Illinois: Illinois League of Advocates for the Developmentally Disabled (2006)

 

Review of Equip for Equality , Illinois’ Protection and Advocacy Agency
by Rita Burke, President
Illinois League of Advocates for the Developmentally Disabled (IL-ADD)

IL-ADD’s membership is composed of the presidents or other representatives from the parent/guardian organizations from all nine of Illinois’ State Operated Developmental Centers (SODCs)

Equip for Equality is a state appointed agency receiving Federal funding which is intended to advance the causes of all Illinois citizens with disabilities. This agency should be even-handedly supporting and advocating for all disability needs and embracing a full continuum of appropriate services. It does not.

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Organization Sign On Letter

ORGANIZATION SIGN ON LETTER SIGN-ON LETTER IN SUPPORT OF H.R. 1255!

Contact Tamie at  This e-mail address is being protected from spambots. You need JavaScript enabled to view it to add your organization to the list.
100 organizations have joined the letter so far. It's not too late!

 WIDESPREAD SUPPORT FOR H.R. 1255

The undersigned national, state and local organizations representing and advocating for the rights of thousands of people with mental retardation and their families from across the country join together in support of H.R. 1255.

Introduced on March 3, 2009 by Rep. Barney Frank (D-MA), H.R. 1255 would require that before federally-financed class action lawsuits against Medicaid-certified and funded Intermediate Care Facilities for Persons with Mental Retardation (ICFs/MR) can proceed, residents and their legal representatives must receive notice of the proposed class action and be given a time-limited opportunity to opt out of it.

This bill is desperately needed and supported by families of ICF/MR residents. It is opposed by the lawyers who bring these suits, as it would limit their discretion with regard to who they are allowed to represent. The undersigned organizations, however, submit that the decision regarding attorney representation should be made by individuals and their legal guardians, not by attorneys.

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