IL-ADD Releases Cost Analysis

The Illinois League of Advocates for the Developmentally Disabled (IL-ADD) has challenged the myth that all persons with intellectual and developmental disabilities (I/DD) can be served for less cost in smaller, unlicensed settings.

On October 13, they released a summary and  detailed cost analysis that considered the actual cost of care for an individual in a state Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IID) as compared to what that same individual would cost in a smaller setting. The analysis considered three care scenarios for BRB in a Home and Community-Based Services waiver setting (called "CILAs" in Illlinois).

BRB is a current resident of a state-operated ICFs/IID. BRB is 41 years old, 6' tall, 190 lbs, and healthy. He has a pervasive developmental disorder with borderline intellectual functioning. He is being treated for obsessive/compulsive behaviors which presently involve consuming huge amounts of fluid; interruptions of is O/C behaviors can bring violent responses. He also has a history of life-threatening PICA, however this has been completely extinguished in his present state-operated ICF/IID setting. He is prone to unpredictable explosive physical aggression toward peers, staff and property. He has been expelled from community-based programs.

While very challenging, BRB is not the most challenging among his peers at his ICF/IID; he cannot be dismissed as a uniquely expensive case. For example, he does not present severe medical conditions, seizure activities, sexual aggression, fire-starting, or (at this time) PICA.

Cost Comparison Findings (Summary)

Some closure advocates claim that people can be served in the community for "on average $55,000" per year. In fact, BRB's care would cost:


Defining "Community" and other HCBS Waiver Proposals: VOR Comments

VOR’s comments relate to the three substantive sections of the proposed federal rule:

(I) Target Groups;
(II) HCBS settings (defining “community”); and
(III) Person-Centered Planning.

Click here to read VOR Comments: CMS-2296-P, April 15, 2011


VOR Submits Federal Comments on Medicaid and Community

On August 17, 2009, VOR submitted its comments in response to the federal Advance Notice of Proposed Rulemaking (ANPRM), released by the Centers for Medicare and Medicaid Services (CMS), the federal agency within the U.S. Department of Health and  Human Services which oversees Medicaid programs. The ANPRM asked for comments relating to allowing states to combine home and community-based services (HCBS) waivers for people with different disabilties who have similar functional needs. CMS also sought input on how to define "community."

In its comment, VOR expressed significant concern that current state budget woes and administrative conveniences would prove too great of temptations to States, leading to dangerous comingling of people with incompatable disability-types, leading to tragic consequences. Many real life examples were cited to reinforce VOR's stated concerns. With regard to defining community, VOR pointed out that both facilities and smaller settings can be "integrated." Our comments reinforce the need for choice, and Olmstead's support for choice.


VOR Supports New Jersey Bill to Protect Individuals with Disabilities Served Out-of-State

VOR Statement in SUPPORT of A3975 and S2600: Prohibiting the Transfer of Individuals with Developmental Disabilities from Out-of-State to In-State Placements if Written Objection Provided and One or More Conditions Exist

January 14, 2015

VOR supports A3975 and S2600 which protect against the transfers of individuals now receiving out-of-state care when the individual or his/her legal guardian objects in writing and when certain conditions relating to the length of placement, proximity to family, cost to the state or level of care needs exist. 

A3975 and S2600’s consideration of individual choice, need and state resources is consistent with the U.S. Supreme Court’s landmark Olmstead v. L.C. decision.

Read full statement


VOR and Save Our Regional Centers Submit Comments in Response to Colorado Olmstead Plan

Colorado’s Save Our Regional Centers (SORC) and VOR have submitted comments in response to Colorado’s Community Living Plan (July 30, 2014).

SORC, a VOR affiliate, and VOR represent individuals with profound intellectual and developmental disabilities receiving Regional Center supports, their peers across Colorado, and their families and legal guardians.

Colorado's Community Living Plan  - it's "response to the Olmstead decision" - “will be monitored and updated,” and that “its contents will continually evolve” (Plan, pp. 4-5). SORC and VOR offer input at this time with the expectation that we will be included as key stakeholders in all aspects of Plan implementation going forward.

We are necessary stakeholders with valuable input.

Read complete comment

Read CO Response


VOR and affiliate Friends of Wyoming Life Resource Center submit joint response to Facilities Task Force Report and Recommendations

December 16, 2014

A Task Force analyzing the role of Wyoming's state-run facilities for seniors, people with disabilities, and veterans presented its final report and recommendations to the legislature at a Tuesday meeting of the Joint Labor, Health and Social Services committee in Cheyenne.

Shawn Humberson, VOR’s Co Wyoming State Coordinator and member of the task force analyzing the role of Wyoming's state-run medical facilities, presented VOR/Friends joint statement to the legislature earlier this week, responding to the Task Force’s recommendations.

Read the VOR and Friends of Wyoming Life Resource Center Joint Response

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