April 21, 2015
SB 639 Update:
SB 639, which proposed the closure of Fairview and Sonoma Developmental Centers has been changed to a “2 year bill,” meaning there will be no further action on this bill this year. Here is an article from the Sonoma Press-Democrat, “Breathing room for Developmental Center advocates.”
Summary of VOR’s Testimony:
SB 639 is motivated by the typical fallacies associated with the demand and cost for specialized, licensed care facilities, such as Sonoma and Fairview Developmental Centers. To force fragile Californians from their chosen homes based on shortsighted myths associated with the cost of care places affected individuals at enormous risk of harm and potentially higher costs to California taxpayers.
Instead taking such a draconian approach – total closure – California lawmakers are instead encouraged to consider solutions which will better utilize Sonoma and Fairview for residents and nonresidents – disabled and non-disabled neighbors – while also increasing the Centers’ ability to serve as a safety net for individuals in community settings who are facing a temporary crisis or whose needs, due to aging or illness, have intensified beyond the ability of the community provider to safely accommodate them.
Positioning the Centers as one option of care a true continuum of care to accommodate the diverse and ever changing needs and demands among the disabled population, while expanding shared use opportunities for these beautiful campuses, is far more visionary, holistic, and reasonable than simply closing these necessary resources forever.
March 30, 2015
House Human Services Committee
Texas House of Representatives
Dear Chairman Raymond, Vice Chair Rose, and Members of the House Human Services Committee,
Please accept this written testimony in SUPPORT of HB 967, a bill for a pilot project to evaluate the use of radio frequency identification technology (RFID) to transmit information regarding residents of certain group homes.
Of keen interest to our organization are best practices and strategies to ensure high quality care in all service settings. HB 967, which will provide for a pilot program for the use of RFID in Home and Community Settings (HCS) upon individual or guardian consent, will serve to ensure that individuals who willingly participate enjoy greater independence and protection.
HB 967, if passed, will help ensure medications are dispensed accurately and, with the potential of tracking which individuals have entered private bedrooms, either deter abuse or ensure justice when abuse has occurred.
Some individuals with I/DD and autism, who by vast majority are served in small community settings, have a tendency of wandering from their homes (“elopement”), placing themselves at risk of traffic, exposure to the elements, personal injury, law enforcement encounters, drownings, and more.
Read full letter testimony
VOR Statement in SUPPORT of A3975 and S2600: Prohibiting the Transfer of Individuals with Developmental Disabilities from Out-of-State to In-State Placements if Written Objection Provided and One or More Conditions Exist
January 14, 2015
VOR supports A3975 and S2600 which protect against the transfers of individuals now receiving out-of-state care when the individual or his/her legal guardian objects in writing and when certain conditions relating to the length of placement, proximity to family, cost to the state or level of care needs exist.
A3975 and S2600’s consideration of individual choice, need and state resources is consistent with the U.S. Supreme Court’s landmark Olmstead v. L.C. decision.
Read full statement
Colorado’s Save Our Regional Centers (SORC) and VOR have submitted comments in response to Colorado’s Community Living Plan (July 30, 2014).
SORC, a VOR affiliate, and VOR represent individuals with profound intellectual and developmental disabilities receiving Regional Center supports, their peers across Colorado, and their families and legal guardians.
Colorado's Community Living Plan - it's "response to the Olmstead decision" - “will be monitored and updated,” and that “its contents will continually evolve” (Plan, pp. 4-5). SORC and VOR offer input at this time with the expectation that we will be included as key stakeholders in all aspects of Plan implementation going forward.
We are necessary stakeholders with valuable input.
Read complete comment
Read CO Response
December 16, 2014
A Task Force analyzing the role of Wyoming's state-run facilities for seniors, people with disabilities, and veterans presented its final report and recommendations to the legislature at a Tuesday meeting of the Joint Labor, Health and Social Services committee in Cheyenne.
Shawn Humberson, VOR’s Co Wyoming State Coordinator and member of the task force analyzing the role of Wyoming's state-run medical facilities, presented VOR/Friends joint statement to the legislature earlier this week, responding to the Task Force’s recommendations.
Read the VOR and Friends of Wyoming Life Resource Center Joint Response
Read Related Article
Nelen Norcross is a firm believer in community integration and a person-centered approach to planning care.
She has been a lifelong advocate for her son, Josh, who has profound behavioral challenges, and recently quit her job in corrections/treatment to work for the Wyoming Independent Living Center.
She knows how integration should look for her Josh, but seriously questions whether the State of Wyoming does.
Read full article