State-by-State Resource Directory

Source: Autism Speaks

Health care (medical and dental) and other resources, as referred by parents.

 

Autism Treatment Network Dental Professionals' Toolkit

Many children experience a great deal of anxiety when visiting the dental practitioner’s office, especially those with autism spectrum disorder (ASD). Feelings of anxiety may be caused by a number of factors including a fear of the unknown, difficulties communicating one’s feelings, and reactions to sensory sensitivities. When children are unable to effectively communicate their feelings of anxiety, they may show uncooperative behavior.

Dentists may rely on a number of behavioral and environmental techniques to help alleviate anxiety and increase cooperation in the dental chair. In this guide designed for dental professionals, we discuss ways to help reduce children’s anxiety levels and increase compliance. It provides general and specific information that may help dental professionals better serve the needs of children with ASD. This tool kit is meant to be used in conjunction with other dental materials developed by Autism Speaks Family Services.

Download the Dental Professionals' Tool Kit (Free)

 

Health Care for Adults with Intellectual and Developmental Disabilities: Toolkit for Primary Care Providers

Adults with intellectual or other developmental disabilities face a cascade of health disparities. They often:

  • have complex or difficult-to-treat medical conditions
  • have difficulty accessing health care
  • may receive inadequate health care
  • may have difficulties expressing their symptoms and pain
  • receive little attention to wellness, preventive care, and health promotion

Yet these adults deserve quality, patient-centered health care as well as the general population.

Our hope is that this toolkit will give virtually every U.S. primary care provider electronic access to best practice tools, and thus will enable each physician to more readily serve adults with intellectual or other developmental disabilities.

Toolkit for Primary Care Providers of Health Care for Adults with Intellectual and Developmental Disabilities
 

National Disability Navigator Resource Collaborative Helps People with Disabilities Find Health Insurance

American Association on Health and Disability
January 30, 2014

Navigators and other enrollment specialists can now access better information to help people with disabilities find health care coverage in the federal and state exchanges. The tools are cross-disability programs developed by the National Disability Navigator Resource Collaborative (NDNRC). The 12-month collaborative was made possible by a one-year grant from the Robert Wood Johnson Foundation.

The navigator website was launched December 1, 2013 at www.nationaldisabilitynavigator.org. There is also an accompanying training guide, the Guide to Disability for Healthcare Insurance Marketplace Navigators. The guide describes the barriers to health insurance people with disabilities have encountered in the past, how disability laws affect the marketplace, what navigators need to know about disability, and much more. It is available at: http://www.nationaldisabilitynavigator.org/ndnrc-materials/disability-guide/.

Read more

 

Down Syndrome Patient Registry

National Institutes of Health (NIH) Press Release
October 26, 2012

Registry connects individuals with Down syndrome with researchers

The National Institutes of Health, in partnership with a third-party vendor, PatientCrossroads, has established a Down syndrome patient registry which will aim to assemble contacts and information sharing among families, patients, researchers and parent groups. According to a press release announcing the new registry, it will allow people with Down syndrome or their family members to enter their contact information and health history in what the institute says is an online, secure, confidential database.

Read more.

 

Find a Doctor or Dentist

Doctors and dentists that are experienced in helping people with intellectual or developmental disabilities:

Special Olympics / Healthy Athletes:  Provider Directory
Special Olympics / Healthy Athletes have compiled a Health Care (Doctors and Dentists) Provider Directory for local health practitioners who have experience in the needs and care of people with intellectual and developmental disabilities.

To access this directory, visit: http://info.specialolympics.org/ProviderDirectoryHA/search.asp?lang=eng

Community Health Centers
Spread across 50 states and all U.S. territories; there are 1,200 Community Health Centers that provide vital primary care to 18 million Americans with limited financial resources. To find a community health center near you, click on http://findahealthcenter.hrsa.gov