REMINDERS:

Tamie Hopp’s new email address is Tamie327@hotmail.com. vor@compuserve.com is no longer valid. See http://www.vor.net/staff for additional VOR addresses and contact information.

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VOR is the only national organization advocating for a full range of residential and support options for people with mental retardation, including Medicaid-certified Intermediate Care Facilities for the Mentally Retarded (ICFs/MR) and home and community-based care. VOR supports choice.
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VOR Weekly E-Mail Update
October 26, 2007

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Table of Contents

 

LEGAL NEWS

 

1. Conservator Wins an Important Case on Behalf of the Developmentally Disabled

 

2. Private Group Homes for the Mentally Retarded Must Follow State Law

 

3. Promises, Promises: The District has three months to show it can help its developmentally disabled residents.

 

4. NY Governor Spitzer Announces Multi-State Lawsuit to Secure Health Insurance for Children

 

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1. Conservator Wins an Important Case on Behalf of the Developmentally Disabled

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Summary: A recent California state appellate court held that conservators and other authorized representatives of the developmentally disabled have a statutorily protected role in the planning for treatment and placement decisions. As a result of the decision, conservators and other authorized representatives of the developmentally disabled will be better able to secure the legislatively mandated level of appropriate care, which has all too frequently been overlooked in the rush to “de-institutionalize” this vulnerable population.

Author:

Don Querio, Esq.

Severson & Werson

 

Date:

October 26, 2007

The published opinion in Conservatorship of Whitley (North Bay Regional Center v. Maldonado) (1st Dist. Ct. App, Oct. 10, 2007) ___ Cal.App.4th ___, 2007 WL 2937808 guarantees conservators and other authorized representatives of the developmentally disabled a role in planning for their treatment and out-placement to community facilities, as well as a full administrative appeal if the conservator or representative objects to a treatment or out-placement plan.

Facing constrained budgets and pressure from advocacy groups, the state-funded agencies serving the developmentally disabled try to move those individuals from state-run institutions to private community facilities that are often unable to adequately care for them.  After 39 years at the state-run Sonoma Development Center, the 52-year-old Whitley was targeted for a move to a private facility in Fairfield which was too far away for his family to maintain regular contact and offered less adequate care than at the Center.  Whitley’s sister and conservator filed an appeal with the California Court of Appeal after a trial court decision rejected her challenge to the planned move. 

The San Francisco law firm of Severson & Werson handled the appeal on a pro bono basis, since the conservator, like most relatives of the developmentally dis­abled, could not afford to fight this battle on her own.  Jan Chilton, the firm’s appellate specialist, spearheaded the effort, with Donald Querio’s and Joshua Whitehair’s assistance.  The opposition included the North Bay Regional Center, the agency trying to displace Whitley, the Attorney General, on behalf of the State Department of Developmental Services, and a federally-funded advocacy group, Protection & Advocacy, Inc.

At the firm’s request, the Court of Appeal first issued a writ of supersedeas, halting the planned move pending the conservator’s appeal.  After full briefing and argument, the court issued its opinion upholding the rights of conservators and other authorized representatives to participate fully in the treatment and out-placement planning process and to challenge objectionable plans through a legislatively-provided administrative appeal, followed by court review on administrative mandate, if necessary.  The wholly discretionary and truncated “Richard S.” court review, to which the agency had wrongly steered Whitley’s conservator, is reserved for persons to whom the Legislature has not given the right to an administrative appeal.

As a result of the decision, conservators and other authorized representatives of the developmentally disabled will be better able to secure the legislatively mandated level of appropriate care, which has all too frequently been overlooked in the rush to “de-institutionalize” this vulnerable population.

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2. Private Group Homes for the Mentally Retarded Must Follow State Law

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Summary: “The judge has made it clear that privatizing the system of care for people with MR/DD does not undo the rule of law protecting mentally retarded people served by the Commonwealth from being evicted from their homes.  Private non-profits can’t pretend that they are above the law.” – David Hart, President, Massachusetts Coalition of Families and Advocates for the Retarded (COFAR) (VOR’s Massachusetts affiliate).

 

FOR IMMEDIATE RELEASE:

October 17, 2007

COFAR

http://www.cofar.org/

 

Court: Private Group Homes for the Mentally Retarded Must Follow State Law

 

In a decision likely to affect persons with developmental disabilities for years to come, Superior Court Judge Geraldine S. Hines issued a preliminary injunction Monday prohibiting the Massachusetts Department of Mental Retardation and Nexus, Inc. of Woburn from transferring Kristine Medeiros, 37, from her group home in Woburn without affording her the protections of M.G.L 123B, the statute which regulates the movement of mentally retarded people from their homes. The judge specifically rejected the argument by DMR and Nexus attorneys that privately operated group homes under contract with DMR were not “facilities” regulated by Chapter 123B.

 

“This decision about one woman is an important precedent for the vast majority of the 32,000 people in Massachusetts with mental retardation/developmental disability,” said COFAR President David J. Hart. “The judge has made it clear that privatizing the system of care for people with MR/DD does not undo the rule of law protecting mentally retarded people served by the Commonwealth from being evicted from their homes.  Private non-profits can’t pretend that they are above the law.”

 

The case is unrelated to, but has some parallels with, the federal court case about closing the Fernald Center, where Judge Joseph Tauro ruled August 14 that residents must be offered the option of remaining in their long-term home. That case has been appealed by DMR to the United States Court of Appeals.

 

Background: Kristine Medeiros has mental retardation and autistic tendencies, and developed retinal detachment in one eye since moving to the Woburn home five years ago. Kristine is verbal and friendly, although she can self-injure when frustrated or confused. She can write notes to her parents and house staff describing what happens to her. After a year of arguments with her parents about face guards and medication errors, Nexus notified DMR that it was canceling the contract regarding Kristine’s services effective August 28, 2007 and would evict her from her home of 5½ years. Nexus and DMR gave no notice and no hearing as mandated by M.G.L. 123B, and the proposed new home, with lower-functioning (non-verbal) residents, does not meet Kristine’s needs.

 

Chapter 123B Section 3 (http://www.mass.gov/legis/laws/mgl/123b-3.htm) guarantees that transfers of people with mental retardation require 45 days written notice to guardians, which notice has to include a statement of how the transfer “will result in improved services and quality of life for the retarded ward,” and the right of guardian to “examine” the new facility. Individuals and guardians may appeal, and no transfer can be made while the appeal is in progress.

 

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3. Promises, Promises: The District has three months to show it can help its developmentally disabled residents.

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Saturday, September 15, 2007
Washington Post Editorial

THE D.C. government has made a lot of big promises about improving the treatment of the mentally retarded men and women in its care. Over the years, it has broken most of those promises, and the result has been the neglect, mistreatment and even the deaths of many vulnerable people. Now a judge is demanding that the District keep some little promises. If it fails, it will be clear that the District is simply incapable of providing proper care, and the court should feel compelled to take over the system.

U.S. District Judge Ellen S. Huvelle, presiding over the 31-year-old class action lawsuit involving onetime residents of the notorious Forest Haven facility, has made no secret of her aggravation over the lack of progress in protecting the health and safety of developmentally disabled residents. Decrying "the tortured history" of the case, Judge Huvelle in March found D.C. officials in "systematic, continuous, and serious noncompliance with many of the court's orders." Still, she has resisted placing the Department of Disability Services in receivership. This week, she issued an order that refreshingly focuses on tangible steps to improve the health and safety of the some 650 surviving members of the plaintiff class. The beauty of the judge's approach is that it compelled the city and the plaintiffs to come up with specific goals that can be accomplished in the next 90 days. There's nothing pie in the sky about the list that Judge Huvelle accepted this week. It includes recruiting five providers of high-quality residential care, expanding a medical clinic program, figuring out which homes really are substandard, and identifying and treating the 25 most medically fragile residents. Key to recruiting and retaining qualified providers is the District's promise to increase the rates it pays. Cost-of-living increases inexplicably were frozen for five years. That D.C. Mayor Adrian M. Fenty (D) is agreeing to come up with the $4.7 million city share (Medicaid and Medicare would pick up the rest of the $15.6 million tab) is a hopeful sign of his administration's commitment to reform.

Make no mistake: If the District meets all the goals, there are still major problems in the system and much more to be done. The next three months will be a gauge of the city's ability to make changes, and the results will be known on Jan. 17. If D.C. officials can't keep their promises this time, we don't see how the judge has any other option but to place the system in receivership.

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4. NY Governor Spitzer Announces Multi-State Lawsuit to Secure Health Insurance for Children

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STATE OF NEW YORK
EXECUTIVE CHAMBER
ELIOT SPITZER, GOVERNOR
FOR IMMEDIATE RELEASE
October 1, 2007

Byline: Bi-Partisan, Multi-State Legal Challenge to Protect Critical Care for Children

Governor Eliot Spitzer today announced that a group of states will be pursuing legal challenges against the Bush Administration for violating provisions of the federal State Children’s Health Insurance Program (SCHIP), which provides affordable health coverage for children in families that cannot afford to buy private health insurance.

The state action was triggered in August when the federal Center for Medicare and Medicaid Services (CMS) arbitrarily imposed new rules that block states from expanding their children’s health insurance programs. Illinois, Maryland, New Jersey, Washington, Arizona, California and New Hampshire will participate in litigation, either as plaintiffs or by filing supporting briefs, against the Bush Administration for violating the provisions of the SCHIP statute.

The SCHIP reauthorization bill passed overwhelmingly by both houses of Congress last week would roll back these new rules. President Bush has promised to veto the legislation.

“With the health of our nation’s children hanging in the balance, President Bush is preparing to veto a bipartisan compromise that Congress has forged to ensure that all children receive quality health care,” said Governor Spitzer. “I join with Governors from states across the country in urging the President to do the right thing by signing this important legislation. If this bill does not become law, we will proceed with our lawsuit. Our kids deserve nothing less.”

The lawsuit will specifically challenge the rules that conflict with the SCHIP statute and were issued without an opportunity for public comment as required by the federal Administrative Procedures Act. The states are seeking a court ruling declaring those rules to be unlawful and prohibiting the federal government from applying the rules when reviewing individual state plans submitted under SCHIP.

“It sends a powerful and compelling message when the U.S. Congress, States across the nation, and the public are so clearly committed to ensuring that families have access to affordable health care for their children,” added Governor Spitzer.

Governor Chris Gregoire of Washington State said: “In Washington, we know that taking care of our kids not only makes good economic sense, but it is the right thing to do. The federal government should continue to be a partner, rather than a roadblock, to our children’s health.”

Governor Martin O’Malley of Maryland said: “The SCHIP program has enjoyed bipartisan support since its inception and it has provided millions of children access to needed health  services including preventive services. These barriers imposed by the Bush Administration mortgage both the fiscal and health future of our nation.”

Governor Jon Corzine of New Jersey said: “SCHIP is an unqualified success in New Jersey and in states across the nation, and the Bush Administration’s determination to pursue a course of action that will harm our children’s health is incomprehensible. This same Administration previously signed off on our decision to cover the 10,000 New Jersey kids they are now seeking to kick out of SCHIP, and the lawsuit we filed today demonstrates that we will simply not let that happen. Washington should be a partner to states that are trying to cover more children, not an opponent, and I urge the President to reverse course and sign the bipartisan legislation before him.”

New Hampshire Governor John Lynch said: “Hard-working families are caught in a no-win situation - they earn too much to qualify for Medicaid, their employers do not offer coverage, and they cannot afford private coverage. The Children's Health Insurance Program has made quality health care affordable and possible for these children. At a time when we should be working together to expand access to affordable, quality health care, this sudden and arbitrary rule change threatens the health insurance coverage of children across the nation. We will fight this in Court if necessary, but I hope the federal government will do the right thing on its own - overturn this rule and pass funding for the Children's Health Insurance Program.”

Assembly Speaker Sheldon Silver said: “The action being taken today underscores the significance of the need for affordable health care for families across our country. The fact that
states are forced to band together in a desperate attempt to provide long overdue health care to children is a testament to just how out of touch the Bush administration is with the needs of working families.”

Senate Minority Leader Malcolm A. Smith said: “Promoting children's health and wellness is one cause we should all be able to rally around. Unfortunately, the Bush administration doesn't see it this way. Instead, the president has persistently stonewalled commonsense plans to provide health coverage for thousands of children in New York State, and throughout the nation. I applaud Governor Spitzer for working cooperatively with the Governors of other states in challenging the Bush administration's decision to veto Federal SCHIP legislation. Providing children with affordable health insurance is simply the right thing to do.”

Assemblyman Gottfried said: “We had overwhelming bipartisan support when we raised our Child Health Plus eligibility. President Bush’s actions only protect the profits of the insurance industry. I applaud Governor Spitzer for taking this fight to court to protect our children.”

Senator John Sampson, the Ranking Democrat on the Senate Health Committee, said: “With a mere stroke of the pen, the Bush administration has sent a cynical message to families in need of
affordable health care coverage. Here in New York we have made important strides, under Governor Spitzer's leadership, to extend universal health coverage to all of our state's 400,000
uninsured children. However, President Bush's veto of Congressional SCHIP legislation has derailed those plans, leaving us no other choice than to respond decisively in getting back on track our efforts assisting New York families.”

Department of Health Commissioner Richard F. Daines said: “Children need regular checkups in their early years in order to have a healthy life. When children aren't insured, very often parents wait until a small problem gets much worse before they pursue medical treatment, just because they can't afford it.


Children need their vaccinations, health screenings for lead poisoning, vision or dental problems. They need a clinician to monitor their growth and development. SCHIP insures hundreds of thousands of children in New York, and should be continued and expanded to make sure every child in New York has access to health insurance, whether from a public or private source.”

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Tamie Hopp

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