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Plan to Join Us!! VOR 2006 Annual Meeting and Washington Initiative. See -
http://vor.net/AnnualMeeting2006.html for complete details, including a
registration form.
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VOR is the only national organization advocating for a full range of
residential and support options for people with mental retardation,
including Medicaid-certified Intermediate Care Facilities for the Mentally
Retarded (ICFs/MR) and home and community-based care. VOR
supports choice.
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VOR Weekly E-Mail Update
March 10, 2006
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1. Siblings and VOR
2. Adult Siblings of Individuals with Disabilities Research
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1. Siblings and VOR
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VOR recognizes that siblings and other extended family members are VOR's
"next generation" of leaders and members. We have made a concerted effort
in recent years to get siblings, cousins, nieces and nephews involved as
donors, members, and volunteers. In all three categories we've had some
success, but certainly we've met up against the expected challenges of
involving this next generation, including careers and kids.
We continue to watch for opportunities, however, to develop the potential
of our "next generation."At VOR's Annual Meeting in Washington, D.C. (June
10), for example, we are honored to include two very, very active siblings
on the agenda - Bill Choslovsky and Tom Frain. Both have assumed leadership
positions within their family organizations and both can cite the success
their organizations have had in enlisting siblings (as members and
leaders). We expect to learn from them, and be inspired by them, this June.
With this issue of the Weekly E-Mail Update, we share an opportunity to
have adult siblings contribute to a national survey on their experiences as
a sibling of a person with mental retardation.
PLEASE DISTRIBUTE this VOR Update to other adult siblings in your circles
of family and friends, and along with sharing the survey, encourage VOR
membership and/or participation in VOR's Annual Meeting and/or Washington
Initiative. A registration form, which can also be used as a membership or
donation form is provided at the end of this update.
THANKS FOR YOUR SUPPORT!!!
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2. Adult Siblings of Individuals with Disabilities Research
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Source: The Arc-US
Tuesday, February 28, 2006
We know surprisingly little about the relationship between individuals with
disabilities and their adult siblings.
To better understand this long-lasting relationship, we have created the
"Adult Sibling Questionnaire" for anyone age 18 or over with a sister or
brother with disabilities.
The Adult Sibling Questionnaire has questions in the following general
areas:
*You
*Your Sibling with Disabilities
*Your Family
*Joint Activities and Involvement
*Support Needs of Brother/Sister
*Your Health and Well-Being
*Reflections on Your Relationship with your Brother/Sister
The questionnaire should take 20-25 minutes to complete, all answers are
anonymous, and participation is voluntary.
A summary of the results of the questionnaire will be provided to those who
request it. In addition, the findings will be presented at The Arc National
Convention, October 12-14, 2006 in San Diego, and in The Arc's newsletter,
InSight, and other publications and scientific journals.
If you are 18 years of age or older and have a brother or sister with
disabilities, please participate!
The online version of the questionnaire is at
https://kc.vanderbilt.edu/FamilyResearch
Paper copies are also available. Call or email your contact information
(Name, Address, City, State, Zip) to:
Family Research phone: 1.888.322.5339 [free] or
email:FamilyResearch@vanderbilt.edu
We sincerely appreciate your time and interest in this important area of
family research.
Thank You
Robert Hodapp, PhD
Richard C Urbano, PhD
Ann Kaiser, PhD
On behalf of the National Sibling Consortium and the Vanderbilt Kennedy
Center for Research on Human Development.
-End-
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VOR MEMBERSHIP, CONTRIBUTION AND REGISTRATION FORM
(see also: http://vor.net/RegForm2006.html)
___I want to personally tell Congress how important Medicaid is for people
with mental retardation. I'll be there!
___ I'm sorry, but I am unable to join you in Washington, D.C., but I would
like to support VOR's efforts. I'll use this form to JOIN or make a
CONTRIBUTION.
Send form to Voice of the Retarded 5005 Newport Dr. #108, Rolling Meadows,
IL 60008
Fax: 847-253-6054 vor@compuserve.com * Phone: 847-253-6020 * A
non-profit 501(c)(3) organization
Name(s) __________________________________________
Address __________________________________________
City, State, Zip ____________________________________
Home Phone ______________________________________
Work Phone_______________________________________
Email ____________________________________________
Family/professional org/company (if applicable)
__________________________________________________
Charge card: __ MC __ Visa Expiration Date _______
Credit card number __________________________________
Signature __________________________________________
Mark all that apply:
___$50 per person for member registration at the Annual Meeting on
Saturday, June 11 if paid by May 31, 2006 <2006 WASH-REG>
___$60 per person for member registration after 5/31 <2006 WASH-REG>
___$75 per person for non-member registration at the Annual Meeting on
Saturday, June 11 includes one-year membership if paid by May 31, 2006.
<2006 WASH-REG>
___$85 per person for non-member registration after 5/31. Membership
included.
<2006 WASH-REG>
___Dues ($25) and/or donation of $_________is enclosed. <2006
WASH-DONA>
___ I/We will attend the Washington Initiative only
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THANK YOU!
Contact Tamie Hopp at vor@compuserve.com or 605-399-1624 with any
questions.
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