NOTE: There will be no update, February 9, 2007
***************************************************************************
Plan to Join Us!! VOR 2006 Annual Meeting and Washington Initiative. See -
http://www.vor.net/VORAnnualMeeting2007.htm for complete details, including
a registration form.
**************************************************************************
VOR is the only national organization advocating for a full range of
residential and support options for people with mental retardation,
including Medicaid-certified Intermediate Care Facilities for the Mentally
Retarded (ICFs/MR) and home and community-based care. VOR supports choice.
***************************************************************************
-------------------------------------------
VOR Weekly E-Mail Update
February 2, 2007
-------------------------------------------
=======================================================
1. "Waiver without a Waiver": Congress approves major changes to Medicaid
Home and Community Based Services (VOR reprint)
2. States Now Have More Flexibility to Adopt Personal Care Programs Without
Waivers
3. Tax Legislation Makes Technical Corrections to DRA
4. Bipartisan Group in House, Senate Pushes Grants for States to Expand
Health Insurance Access
5. Please contribute to VOR! Use form at the end of this update to support
our effective advocacy.

Coming Up: There will be no update on Friday, February 9, 2007. The next
update will be distributed on February 16.
=======================================================
---------------------------------------------------------------------------
1. "Waiver without a Waiver": Congress approves major changes to Medicaid
Home and Community Based Services (VOR reprint).
---------------------------------------------------------------------------

Summary: The following article first appeared in VOR's newsletter, The
Voice, in Spring 2006. The referenced provision of the Deficit Reduction
Act (DRA), Section 6086, became effective January 1, 2007. This article
shares VOR's perspective, including cautionary notes, regarding the new
Medicaid community benefit. The next article gives background information
about Section 6087, "Cash and Counseling", to which some of VOR's concerns
also apply.

Source: The Voice, Spring 2006.

Section 6086 of the Federal Budget Deficit Reduction Act of 2005
establishes major changes to how states can implement home and
community-based services (HCBS). States now can provide any of the services
covered under the HCBS waiver without going through the waiver process. 

What's good about the waiver process?

For a waiver to be approved, states historically have had to submit their
proposals to the Centers for Medicare and Medicaid Services (CMS) for
approval based primarily on the following state assurances: health and
welfare of waiver participants; plans of care responsive to waiver
participant needs; only qualified waiver providers; State eligibility
assessment includes need for institutionalization; State Medicaid Agency
retains administrative authority; and the State provides financial
accountability (the waiver must cost less than the institutional program).

HCBS waivers are reviewed every 3-5 years. In 2005, CMS refined its method
of quality oversight, initiated with the release of The Protocol in 2000.
In January 2004, CMS made mandatory the use of the Interim Procedural
Guidance as the method for federal waiver review. The Guidance requires CMS
staff to solicit evidence from the states as to their quality management
strategy and implementation, including evidence that the statutory and
regulatory assurance have been met. CMS also revised the voluntary waiver
application template and the annual report form ("372 form") to gather
additional information about how states assure and improve quality (Source:
The Voice, Winter 2004).

Although HCBS waivers did not afford the same level of quality assurance
and oversight as the Medicaid Intermediate Care Facility for Persons with
Mental Retardation (ICF/MR) program, the process afforded beneficiaries
some protection.

What States gain with the new Section 6086 State Plan Option benefit

The new HCBS State Plan Option provides states with even more flexibility
than is available under the waiver, but with virtually no federal
oversight. States are only required to submit to CMS quarterly reports
(Form 64), showing the number of people served and the cost to serve them.
Furthermore, States do not have to establish budget neutrality, unlike the
waiver, which requires the HCBS benefit cost less than institutional care.
States will also now be required to establish stricter eligibility (level
of care) criteria for institutional services than for community-based
services. 

Like the waiver, States can restrict what, to whom and where a covered
services are provided. 

The new HCBS State Plan Option also expressly allows states to cap
enrollment and maintain waiting lists for services now covered under the
state Medicaid plan, such as personal care services and rehabilitation
services, by moving them into the new HCBS State Plan Option. This
provision is aimed at curbing the many waiting list lawsuits that have been
filed against states  25 as of May 2005. Waiting list lawsuits assert that
federal Medicaid law obliges a state to furnish home and community services
to eligible individuals when needed.

What about people currently receiving HCBS waiver services

The only requirement in the new benefit is that an individual's current
HCBS waiver benefit expire. There is no requirement that states continue to
provide the same or any benefits. In other words, as states begin to
exercise their new found flexibility, a great many people could find
themselves without services, or with reduced services, and with virtually
no legal recourse to challenge these changes. 

Conclusion

Despite strong opposition by disability organizations, including VOR,
Section 6086 passed. Its passage represents perhaps the most significant
reform to Medicaid law since the passage of the HCBS waiver. Seriously
negative ramifications are predicted upon implement. It is predicted that
the "waiver without a waiver" benefit will undermine the availability and
quality of Medicaid home and community-based services. Although States can
still opt to provide HCBS waiver services, overtime there seems to be
little incentive for a state to pursue this more "restrictive" process. V

---------------------------------------------------------------------------
2. States Now Have More Flexibility to Adopt Personal Care Programs Without
Waivers
---------------------------------------------------------------------------
Source: BNA, 2007

States will now be able to more easily provide Medicaid beneficiaries in
need of personal care services with a new "self-directed" personal
assistance service option, a private group said Jan. 29.

Prior to Jan. 1, any state interested in introducing a so-called Cash &
Counseling option was required to obtain a Section 1115 or 1915c waiver
from the Centers for Medicare & Medicaid Services, according to an
announcement from the Cash & Counseling National Program Office at the
Boston College Graduate School of Social Work. However, Section 6087 of the
Deficit Reduction Act of 2005, which took effect Jan. 1, now allows states
to offer a Cash & Counseling option within their regular Medicaid states
plans without first obtaining a waiver.

Known as "Cash & Counseling," the program gives beneficiaries eligible for
personal care services--frail elderly people and those with
disabilities--the option to manage a flexible budget and decide for
themselves what mix of goods and services will best meet their care needs.
Cash & Counseling was created to help address the serious barriers these
individuals can meet when seeking personal assistance through the
traditional route, state-contracted home care agencies.

Typically, services chosen involve help at home with daily activities such
as bathing, dressing, grooming, and meal preparation. Cash & Counseling
participants may use their budget to hire their own personal care aides,
including family members and friends, as well as buy items or make home
modifications that help them live independently.

The Cash & Counseling program is jointly funded by the Robert Wood Johnson
Foundation and the Department of Health and Human Services.

"The new law will make it possible for Cash & Counseling to become an
option in more states--giving thousands more elderly adults and people with
disabilities choice and control over their Medicaid personal assistance
services," said Kevin J. Mahoney, director of the Cash & Counseling
National Program Office at Boston College.

Mahoney added that the federal waiver process is long, cumbersome, and
difficult for states, and the new option will address many of the issues
that currently hinder states that want to offer the self-directed option.

The release said that based on the results, 12 more states are now
implementing Cash & Counseling programs: Alabama, Illinois, Iowa, Kentucky,
Michigan, Minnesota, New Mexico, Pennsylvania, Rhode Island, Vermont,
Washington, and West Virginia.

More information on Cash & Counseling programs is at
http://www.cashandcounseling.org.

---------------------------------------------------------------------------
3. Tax Legislation Makes Technical Corrections to DRA
---------------------------------------------------------------------------
--------

Note: VOR 2006 Washington Initiative participants called on Congress to
pass a Deficit Reduction Act (DRA) technical correction relating to cost
sharing. The article below relays that such a bill passed late in December,
2006.

According to the National Association of State Directors of DD Services
(NASDDDS, Jan. 19, 2007; http://www.nasddds.org/publications), the Tax
Relief and Healthcare Act of 2006 (TRHA), passed shortly before the close
of the 109th Congress, contains two technical corrections to last year's
Deficit Reduction Act (DRA) important to advocates for people with
disabilities:

 * Medicaid recipients below 100 percent of the federal poverty line are
not subject to most of the new cost sharing requirements of the DRA-a
protection that most legislators agreed was part of the intent of Congress,
but which did not appear in the DRA due to a drafting error [NOTE: VOR
called on Congress to make this technical correction during the June 2006
Washington Initiative]. Congress also clarified that the total cap on cost
sharing applies to the family, not on a per person basis within a family.

* The TRHA codifies a CMS clarification that Medicare and Supplemental
Security Income (SSI) recipients are exempt from the citizenship
documentation requirements. TRHA extends citizenship documentation
exemptions to recipients of Social Security disability benefits.

One technical correction sought by advocates was not included. The DRA,
which allows states to restructure their Medicaid programs for certain
beneficiaries into "Benchmark Plans," does not specify that those benchmark
plans must provide Early Periodic Screening, Diagnosis, and Treatment
(EPSDT) services to enrolled children. Although it has generally been
conceded that this was an error of omission, and a technical correction was
included in the Senate version of the legislation, the law as passed does
not address this issue.

---------------------------------------------------------------------------
4. Bipartisan Group in House, Senate Pushes Grants for States to Expand
Health Insurance Access
---------------------------------------------------------------------------
Source: BNA
ISSN 1091-4021
Volume 12 Number 11
Thursday, January 18, 2007

A bipartisan, bicameral group of lawmakers Jan. 17 introduced bills to
provide federal grants to states to carry out reforms to reduce the number
of individuals without health insurance coverage.

The introduction of the legislation is an indication that states have
become laboratories for health care reform efforts and that Congress is
unlikely to consider sweeping reforms in the next two
years, sponsors of the measures said at a press briefing.

The bills would establish a "State Health Innovation Commission" that would
review state health reform proposals. The proposals then would be subject
to approval by Congress. The review process would take about six months,
bill supporters said.

Proposals spanning the political spectrum likely will be spawned by the
bills, from single-payer types plans to those using the tax code to provide
coverage to the uninsured, to expansion of
Medicaid or State Children's Health Insurance Program plans, they said. The
number of Americans without health insurance reached 46.6 million in 2005,
according to the Census Bureau.

Congressional Approval Needed

The bill would provide as much as $4 million for the operation of the
commission, but the amount of money available to states would depend on the
type and scope of plans submitted by states, they said.

The commission would act in much the same way as the Base Realignment and
Closure Commission does, as votes would be taken on numerous state health
reform plans as part of a package, they added.

After five years, the commission would report to Congress about state
efforts and recommend possible additional congressional action.

The Senate bill, the proposed Health Partnership Act (bill number
unavailable), was introduced by Sens. Jeff Bingaman (D-N.M.) and George
Voinovich (R-Ohio). The House bill, the proposed Health Partnership Through
Creative Federalism Act (H.R. 506), was introduced by Reps. Tammy Baldwin
(D-Wis.), John Tierney (D-Mass.), and Tom Price (R-Ga.). Both bills also
were introduced in the 109th Congress.

Health care lobbyists and policy analysts have said helping reduce the
number of uninsured Americans may be a topic on which Democrats and
Republicans could work together in the 110th Congress, although the federal
budget deficit likely would prevent major proposals from becoming law.

State Initiatives

A report issued Jan. 17 by the Robert Wood Johnson Foundation said states
are motivated to provide coverage for the uninsured for a variety of
reasons, including declines in employer-sponsored health insurance,
improved state economies with increased state revenues, and the lack of
national action.

The report, State of the States 2007, Building Hope, Raising Expectations,
found that more than a dozen states have enacted innovative policies to
expand coverage; they include comprehensive
health care reform (Massachusetts, Vermont, Maine) , public-private
partnerships (Arkansas, Montana, New Mexico, Oklahoma, Rhode Island,
Tennessee, Utah), and initiatives to cover all
children (Illinois, Pennsylvania).

California Gov. Arnold Schwarzenegger (R) Jan. 8 unveiled a health care
reform plan that would require every one of the state's 6.5 million
uninsured residents to have health insurance, and use a
combination of funds from individuals, employers, providers, hospitals, and
state and federal government to pay the $12 billion price tag.

"States are facing a 'perfect storm' with health care," said State Coverage
Initiatives Acting Director Enrique Martinez-Vidal, "and that has provided
governors and state legislators with the
political will necessary to tackle the problem. States have been fertile
testing grounds for new reforms and have proven that bipartisan compromise
is possible." The state coverage initiatives
program is a national program of the Robert Wood Johnson Foundation.

Valuable Information

Lawmakers said while individually they may disagree with the best way to
expand health insurance, funding state initiatives will provide valuable
information about covering the uninsured.

"The truth is, dealing with this problem between now and the [2008]
election is not realistic," Bingaman said of a comprehensive solution being
considered by Congress.

"While there are many health reform bills on the table, including my own
preference for a single payer plan, it's clear to me, and has been for some
time, that no single approach has enough support to become law," Baldwin
told reporters.

Price said he favored the bill because "one-size fits all doesn't work in
health care . . . and it's not politically feasible. What is right for one
state may not be right for another."

"For too many years, I have listened to my colleagues on both sides of the
aisle talk about the rising cost of health care and the growing number of
uninsured. And for too many years, I've seen
little progress here at the federal level," Voinovich said.

The bill "aims to break the logjam and allow states to experiment with
health care reform options," he added. "Our hope is the bill will provide a
platform from which we can have a thoughtful conversation about
comprehensive health care reform here in Washington."

The Robert Wood Johnson report is available on the Web at
http://www.statecoverage.net/pdf/stateofstates2007.pdf

---------------------------------------------------------------------------
Tamie Hopp

REFERRAL/MEMBERSHIP/CONTRIBUTION FORM

THREE EASY WAYS TO SUPPORT VOR > REFER, CONTRIBUTE OR JOIN

THANK YOU FOR YOUR SUPPORT!

TO JOIN OR CONTRIBUTE: $25 per individual, $150 per family organization, or
$200 per provider/professional organization. Extra donations are welcome!
You may pay by credit card or check.

TO REFER SOMEONE TO VOR: Use the form below, including the additional
sections for referrals.

Mail the completed form (if joining or contributing) with payment to:
 
Voice of the Retarded
5005 Newport Drive, Suite 108
Rolling Meadows, IL 60008
847-253-6054 fax (for referrals or credit card payments)
vor@compuserve.com (for referrals or credit card payments)

FOR REFERRALS:   ____ The contact information provided is for someone I
think would consider membership with VOR. 

FOR REFERRALS:    _____ You may use my name in any correspondence with this
individual. My name is ________________________.


____________________________________________
Name
 
_____________________________________________
Address (if paying by credit card, use billing address). All forms must
include complete address including zip code)
 
 
_____________________________________________
City                  St        Zip
 
 
_____________________________________________
Phone                              Fax       
 
 
_____________________________________________
E-Mail

_________________________________________________
Family/Professional Organization Affiliation (if applicable)

VOR now accepts Master Card and Visa. If paying by credit card, please
provide the following information:

Amount to charge to card:
___$1,000 ___$500 ___$250 ___$150 ___$50 ___$25   $_____ Other amount

_____ Master Card
_____ Visa

Card Number: ___________________________________

Expiration Date: __________________________________

Cardholder's Signature: ___________________________

VOR * 836 S. Arlington Heights Rd., #351 * Elk Grove Village, Illinois * 60007

877-399-4VOR ph. * 847-258-5273 fax * tamie327@hotmail.com