H.R. 3995 INTRODUCED BY BARNEY FRANK -
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Developmental
Disabilities Assistance and Bill of Rights Act Resources
VOR Executive Summary
- The Need for Immediate Reforms
The 2007 Reauthorization of the
Developmental Disabilities Assistance and Bill of Rights Act
VOR Full Presentation
- The Need for Immediate Reforms
The 2007 Reauthorization of the
Developmental Disabilities Assistance and Bill of Rights Act
Why Congress Should Care About the ICF/MR Program and
the People It Serves: The Human Consequences of the DD Act Programs’
Ideologically-Based Attacks on ICF/MRs
VOR DD Act Task
Force Report
Federal Oversight of
Entities Funded Under the DD Act: Abuse of DD Act Programs' Powers and Resources
Executive Summary
Full Report: Abuse of DD Act
Family/Guardian
Testimonials: P&A's failure to include families and respect residential choice
SUMMARY of TESTIMONIALS
Arkansas: Attorney/Parent testimonial (statewide
family association) (2006)
California: Coffelt Case Study 2006 Update
California: Coffelt Case Study (2000)
California: Parent testimonial (2007)
California: CASHPCR (statewide family association) testimony (2006)
Florida: Parent NON-involvement in Brown v. Bush
Illinois: Illinois League of Advocates for the
Developmentally Disabled (statewide family association) testimonial (2006)
Kentucky: Parent Leader Testimonial (2007)
Maryland: Parent testimony (2006)
Ohio: OLMR (statewide family association) testimony
(2006)
Pennsylvania: Pennsylvania League of Concerned
Families of Retarded Citizens (statewide family association) testimonial (2006)
Utah mother, her son's severe burns at a group
home, and the Utah P&A's lack of response
Legal Resources
Developmental
Disabilities Assistance and Bill of Rights Act of 2000
Section 143 of the DD Act - System Required
Deinstitutionalization is Not Mandated by the
DD Act
Protection and Advocacy
Agencies Involvement in Deinstitutionalization Lawsuits, GAO-03-1044
Compliance with State Plan
and Payment Provisions, 42 U.S.C. §1396n
Code of Federal Regulations,
Part 441: Services - Requirements and Limits Applicable to Services; Subpart G,
Home and Community Based Services - Waiver Requirements
DD Act Legislative
History
1993 House Energy and Commerce Committee Report
Protection and Advocacy Federal Funding
Protection and Advocacy Class Action MR/DD
Lawsuits
Class Action
Litigation: ICF/MR (MR/DD) Deinstitutionalization Cases Filed By Protection and
Advocacy
Olmstead Resources
The Olmstead
Decision
Olmstead v. L.C. - resources
(VOR Olmstead Brief; Olmstead and Choice; What Olmstead is Not; Olmstead and
Guardianship)
Medicaid ICF/MR and Home and
Community Based Services Waiver Resources
ICF/MR Program - Background and History
ICF/MR Background and Milestones - Centers for Medicare and Medicaid Services
Home and Community Based Services Waivers: An
overview
(including a comparison of federal oversight requirements of ICFs/MR and HCBS
Waivers)
An Invitation to Visit an ICF/MR
Tour Northern
Virginia Training Center - it's very close to Washington, D.C.
Characteristics of Residents of
Large Facilities (Chart)
http://rtc.umn.edu/docs/risp2004.pdf
(see page 31)
Our Family Members: People with Severe and Profound Mental
Retardation (VOR Position)
Systemic
Abuse and Neglect of Persons with Developmental Disabilities in Community
Settings
Media
coverage highlighting the increasing need for more effective federal and state
protections in the ever-expanding community system of care for people with
mental retardation
Federal
Oversight of Growing Medicaid HCBS Waivers Should be Strengthened, GAO-03-576
(June 2003)
Bibliography of 72 peer reviewed studies about the abuse
of children with developmental disabilities (2001)
Letter from
Senators Grassley and Breaux, re: poor HCBS quality
HCBS Quality
Framework and Communications, Centers for Medicare & Medicaid Services
Peer-Reviewed Research
Finding Higher Risk of Mortality in Community Settings (Shavell, Strauss and
Day)
Lack of
Health Care Access for People with Mental Retardation
Closing the Gap: A National Blueprint to Improve the Health of Persons with
Mental Retardation
Special Olympics International: Health Research
